About Us
Children’s Nebraska’s Osteogenesis Imperfecta Clinic is dedicated to improving the quality of life for children with OI. Our team of multispecialty pediatric experts provides compassionate care with advanced technology and treatments. We offer one of the nation’s leading programs for moderate to severe OI, tailoring care to each child’s unique needs. By focusing on improving comfort, growth and development, we collaborate closely with families to meet their goals. Our ongoing research efforts ensure that we provide the most up-to-date treatment options, helping your patients achieve the best outcomes and quality of life.
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Fax completed forms to 402.955.6445.
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Referrals can be sent through our online portal, EpicCare Link. First-time users must click "Request New Account" to enroll.
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Osteogenesis Imperfecta Clinic
Conditions We Treat
Osteogenesis Imperfecta
Osteogenesis Imperfecta (OI) is a genetic disorder that affects the body’s ability to produce collagen, the protein that strengthens bones and connective tissue. As a result, bones become fragile and break easily, often with little or no cause. The severity of OI can vary significantly, with some children experiencing frequent fractures, while others may only show mild symptoms. Cases range from mild, where OI may go undetected, to moderate, with more frequent fractures and fragile bones, to acute cases that can significantly impact life expectancy, often due to respiratory failure. OI affects children of all genders and ethnicities and can have a wide range of symptoms, depending on the severity of the condition.
Meet Our Providers
Our team of pediatric experts includes a multispecialty team of healthcare professionals specially trained and experienced in treating and managing children with OI. Our providers understand the unique challenges children face and collaborate to offer comprehensive, compassionate care.
Treatments and Services
We treat the whole child by creating customized care plans that are adjusted as needed. We consider factors like pain, fracture potential, age, growth, dietary needs and any financial, mental health or behavioral concerns when developing individualized treatment plans.
Our program, one of the most advanced in the nation for moderate to severe OI, includes bone-strengthening medication and when necessary surgical insertion of growing rods to improve comfort, growth and development. Treatment options are tailored to each child's unique needs and may include a combination of the following therapies:
Locations
Related Specialties
Orthopedics | For Providers
Genetics | For Providers
Gastroenterology, Hepatology & Nutrition | For Providers
Physical Therapy | For Providers
Occupational Therapy | For Providers
Audiology | For Providers
Neurosurgery | For Providers
What Sets Us Apart
Exclusive Experts
Our OI team includes pediatric experts in genetics, orthopedic surgery, gastroenterology, endocrinology and metabolic medicine. All are highly trained and experienced in treating and caring for children with osteogenesis imperfecta.
Multidisciplinary Care
Our multidisciplinary team collaborates across divisions to ensure each child receives comprehensive care to meet all their health needs — from orthopedics and physical therapy to audiology and dentistry.
Family Involvement
We consider families as valuable members of our team. Our providers, nurses and specialists collaborate closely with parents and guardians to maximize care and enhance each child’s development.